Tattoo Parlour, Crothersville Girl Community Gathering
By Zach Spicer | The Tribune
CROTHERSVILLE – Taylor Fitch was born with congenital arthrogryposis multiplex.
Arthrogryposis is a term used to describe a variety of conditions involving multiple joint contractures or stiffness, according to Johns Hopkins Medicine. A contracture is a condition where the range of motion of a joint is limited. He may be unable to fully or partially extend or bend.
The cause is unknown, although arthrogryposis is thought to be related to insufficient in utero chamber and low level of amniotic fluid. The patient may have an underlying neurological condition or connective tissue disorder.
Rachel Fitch said her daughter also had a stroke in the womb.
So far, Taylor has undergone thousands of hours of therapy, bracing and more. She had the tendons on the back of her feet cut to relax them as they were twisted. She also underwent a knee amputation and at the same time doctors cut both femurs in half at the hip, rotated them and put them in the right place.
Unfortunately, his amputation became necrotic and Taylor had to undergo two emergency surgeries around Thanksgiving in 2020.
Last year, she had her hardware removed from her hips, as she had managed to heal. Taylor’s doctors are at the Shriners Children’s Greenville in South Carolina, and she has to go there for all of her medical needs.
“They gave us a new perspective and hope for her future,” Rachel said of her 10-year-old daughter.
The next step is to figure out how best to fix his arms.
“Taylor also wants to have both arms amputated, but there’s a specialist in Pennsylvania whose main practice is fixing the arms of AMC’ers,” Rachel said. “He says he can give her some kind of working arms if she has the muscles in her arms, even if they don’t currently work. But we would need funding to go to appointments for that. And right now, we just don’t. I hope we can get funding again to continue his medical needs and travel.
On a positive note, Taylor recently received an Obi robotic feeder. The Adaptive Feeder is intended for people with upper extremity strength and mobility limitations. Through the use of customizable accessibility switches, Obi allows its users to control what they eat and when. It increases independence, social interaction, mealtime enjoyment and well-being.
In July 2021, Rachel said she submitted paperwork to the state requesting a manger, but never received a response.
Taylor’s school, Austin Elementary, bought one so she could feed herself more easily and not have to be fed in front of her classmates, and she used it every day at school.
She also needed it at her home in Crothersville because she used a lap tray and bear claw feeder.
“It’s basically a suction cup base with a rod and a magnet at the top that her fork or spoon sticks to,” Rachel said. “His current process is very slow, messy, and half his food falls off.”
Rachel posted on Facebook thinking she was going to have another bake sale to buy a bird feeder. Kyle McIntosh, owner of Beauty from Ashes Tattoo Parlor in Crothersville, asked her to private message him the details.
“I’ve known this family for a few years, and I’ve seen them with their boots on the ground doing little fundraisers here and there,” McIntosh said. “But in all honesty, I knew very little about their history.”
The Fitches invited him to church and he was able to meet the family.
“After meeting them, I felt God laying it on my heart. I prayed and thought about it a lot,” McIntosh said.
A few weeks later, early one morning, while browsing Facebook, he saw a post from Rachel with the unfortunate news that the desperate help they had been waiting for to fund medical equipment had been denied.
“Being a determined mom, she would come off the air to do a bake sale to raise money,” McIntosh said. “Instantly I knew this was the confirmation I was waiting for.”
He immediately messaged his wife, Kasey McIntosh, to organize a fundraiser. His answer was simple but powerful: “Yes.”
“I then messaged my fellow artists with this crazy idea of volunteering an entire day for someone they didn’t even know. Their response: ‘Yes,'” Kyle said. a little nervous because there are only three artists, including me, in the studio, compared to the six artists we had for previous events. Also, just like other small businesses and individuals, over the six months as a company, we have had to face enormous financial obstacles.
But Kyle said he knew it was a god thing, so he had to do it, and he reached out to Rachel and asked if she was okay with fundraising for the tattoo. She has accepted.
Within two weeks, the fundraiser was promoted on Facebook and Kyle received many positive responses.
“I spent many late nights after a day full of tattoos preparing hundreds of flash drawings, setting up the studio and ordering everything necessary, only in the hope that we could raise at least half of what they needed,” he said.
On April 30, Kyle said the event had started and God showed up.
“The line was wrapped around the building,” he said. “Some people waited four hours to get a 10 minute tattoo just to help a complete stranger. The strangers became friends. They laughed, cried, ate, prayed, and celebrated together, all while enduring Indiana’s extreme weather , sun and rain. It was really a beautiful sight to see.
After nine hours of tattooing with just three artists, they raised $5,895. Add PayPal and cash donations of $3,610, and a total of $9,505 was raised. This exceeded the target of $7,800.
Rachel then ordered the robotic loader and expected it to arrive within six to nine weeks. Twenty-four hours after paying with donations, it was shipped. He arrived on May 9.
“It’s only a thing of God,” she said.
Rachel said it amazes her that people are willing to help her.
“I strongly believe it was meant to happen where it happened the way it happened so that people’s lives could be changed,” she said.
“I didn’t expect people to sit in the sun and rain for hours to help us out,” she said. “It’s crazy because we’re not someone special, just an average family trying to raise our family and do the best we can. We’re doing what we can, but we’re not getting any government help. in any field and life is expensive. So showing your face to the public and saying, “Hey, I don’t have enough money” is hard.
Kyle and his team worked hard to organize the fundraiser for the family, Rachel said.
“They didn’t even take a share to cover their expenses. They gave us 100% of the profits,” she said. “I wish there was a way to thank them properly.”
At the event, Kasey gave Taylor’s brothers – Danny, 12, Jackie, 11, Traven, 9, and Gavin, 5 – stencil tattoos so they were included as well.
“It made them feel 10 feet tall. As a mother, it was really cool for my kids to see how people should come together to help someone in need,” Rachel said. “But something so amazing was that we literally gave all the glory to God for this whole situation, the way it turned out and the money raised.”
Although the fundraiser was a big success, Rachel said Taylor’s next need was for a new prosthetic leg, and she also needed to undergo a week-long therapy session to address puberty and her disability and what that would look like.
Additionally, Taylor has to return to physical and occupational therapy and travel to Pennsylvania to have her arms treated. She also needs a larger wheelchair, as the state has also denied that.
“Years ago she had a motorized chair built because at that time we were told there was no hope for her and she would never walk, so because she has a motorized chair, they don’t want to buy her a manual one,” Rachel said. “But now that she can walk and has a prosthetic leg, we don’t need the motorized leg anymore. It’s a complicated situation, but basically you only qualify for a new wheelchair every five years.
Anyone interested in donating to the family can PayPal [email protected] or mail donations to their home, 4833 SUS 31, Crothersville, IN 47229.
“I will also be re-launching Taylor’s Facebook page so people can follow. This is Taylor’s journey with AMC,” Rachel said. another appointment or an immediate need arises.”